With 2025 round the corner I wanted to give a brief round up of 2024.
As you are aware in January we lost our inspirational young lady, Annabelle. She was the driving force behind Batten Fighters Forever. Her life made an impact on so many people. The support received for the Charity and our family was amazing. Thank you.
We had our very first Sassy Walk, which was a tremendous success in fundraising and raising awareness. The day was a perfect way to remember Annabelle. It brought together friends and family. We are already planning Sassy Walk 2025!!! – Keep an eye out for more details later in the year.
With your support we were able to help 6 families by offering them grants. The grants were for a wheelchair power pack, towards a child’s bedroom, improve access to someones home, and seizure monitors. You have made these families lives easier. Thank you.
We also donated to Berties Helpers. Bertie was a young man who had CLN1 and gained his wings at the age of 4. Set up by his parents, Bertie’s Helpers provide practical help to families with a child with Batten Disease. They deliver food gifts during stressful, sad, and tough times. This allows families to spend more precious time together without worrying about getting to the shops.
We could not do any of this without you. Your love and support is very much appreciated. Thank you.
If you are planning to take on a challenge in the New Year, please consider us as your chosen cause.
We want to wish you all the best for 2025. Thank you.
