Back in July, we began to notice some changes in our brave Robbie. His bowel movements had become more frequent, and he started to lose weight. By August, tests were underway, and by the beginning of October, we finally had some answers. In just a short time, Robbie’s energy had dropped, his appetite wasn’t great, and he had lost nearly 10kg.

The results pointed toward bowel disease, so on Monday we travelled to Southampton, where Robbie underwent both a colonoscopy and an endoscopy. These revealed multiple ulcers and areas of inflammation throughout his digestive system, leading to a diagnosis of Crohn’s disease.

Robbie was admitted right away to start treatment. He’s now on steroids to help reduce inflammation and has begun Infliximab, which he’ll continue with to manage his Crohn’s moving forward.

We’re so relieved — and incredibly proud — to share that Robbie is already responding well to treatment! His strength and sparkle are returning, and it’s been amazing to see him regaining that special light we all know and love.

Despite how much he dislikes needles (and there have been many this week!), Robbie has faced every challenge with courage and resilience. His bravery continues to inspire us all and reminds us of what true strength looks like.

A heartfelt thank you to the amazing team at Southampton Hospital for their exceptional care, compassion, and support throughout this journey.

Please keep Robbie in your thoughts as he continues to recover and adjust to his new treatment plan. Our little fighter truly embodies everything that Batten Fighters Forever stands for — strength, courage, and never giving up. 💚

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