Fundraising Events & Activities

There are a number of ways in which you can help fundraise for Batten Fighters Forever.

BFF Annual Disco – SAVE THE DATE – 8TH JULY 2022

After two years of the event being cancelled we are very pleased to confirm that we will have our Annual Disco hosted by the St Leonards Hotel.

We are looking for donations towards the raffle. If you can help donate something then please do get in touch with us.

All proceeds of ticket sales and raffle will directly enable grants and support to families with Batten Disease.

Get your tickets now as numbers are limited.

Share, share, share!

Raising awareness is just as important as raising money. Most people have never heard of Batten Disease and without spreading the word, obtaining the funding for treatments or a cure would be an impossible task. Visit our Facebook page and give us a “like”, or use the social media buttons on any of the pages of this website to share our message.

Make BFF your chosen cause

Look after the pennies and the pounds will look after themselves. No matter how “little” you think you will be able to raise, every single bit will go towards a better life for Batten sufferers. So why not raise money and have fun at the same time – Run For Charity has a Top 100 Fundraising Ideas list on their website!

Contact us directly if you wish to discuss a fundraising idea.

Watch this space…

We’ll periodically post new fundraising activities that you can get involved in. Click the Follow button in the right-hand sidebar to be notified every time we publish a blog post, so you’re always up-to-date on what’s happening.

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For all those fundraising and donating their money and/or time, we thank you from the bottom of our hearts