Fundraising Events & Activities

There are a number of ways in which you can help fundraise for Batten Fighters Forever.

Lisas Jump – Tandem Sky Dive -7th September 2019

Why? I hear you ask. My children have to face their fears everyday because they have no choice. I have a choice and I have decided to face my fear. My fear of heights, and speed, VERY HIGH HEIGHTS!!!!

This Tandem Sky Dive is for Annabelle, Robbie and all the Batten families.

Batten disease is the most horrible condition I can think of, children are born healthy and over time they loose their sight, mobility, cognitive, memory and in all cases, their life.

Please sponsor me Thank you

BFF London Marathon Walk – 28th September 2019

The London Marathon Walk (hosted by Discover Adventure) is on 28th September 2019. This is Annabelle’s birthday which gives this event more meaning for us.

We have an amazing team for this walk, Micheal, Jo, Daneshay, Katie, Liz, James, Emily, Robyn, Sharon, Hanna, Ian, Julie, Colin & Valerie will be taking on a 26 mile London Marathon Walk to raise funds to support children and families fighting Batten Disease.

Please show you support and sponsor them

Its not to late to join the team, please follow the link.

Click on the link below to register:

If the 2017 event is anything to go by, you’ll have a great time and well as provide fantastic support for the charity cause of Batten Fighters Forever.


Share, share, share!

Raising awareness is just as important as raising money. Most people have never heard of Batten Disease and without spreading the word, obtaining the funding for treatments or a cure would be an impossible task. Visit our Facebook page and give us a “like”, or use the social media buttons on any of the pages of this website to share our message.

Make BFF your chosen cause

Look after the pennies and the pounds will look after themselves. No matter how “little” you think you will be able to raise, every single bit will go towards a better life for Batten sufferers. So why not raise money and have fun at the same time – Run For Charity has a Top 100 Fundraising Ideas list on their website!

Contact us directly if you wish to discuss a fundraising idea.

Watch this space…

We’ll periodically post new fundraising activities that you can get involved in. Click the Follow button in the right-hand sidebar to be notified every time we publish a blog post, so you’re always up-to-date on what’s happening.

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For all those fundraising and donating their money and/or time, we thank you from the bottom of our hearts