Fundraising Events & Activities

There are a number of ways in which you can help fundraise for Batten Fighters Forever.

South Downs Way Marathon Walk

We would like a team to do a sponsored walk on the 10th May, 28miles in ten hours, starting near Eastbourne and walking some of the South Downs Way.
The cost will be £13
If this is something you would like to do then please message us for the details and registration.



BFF Prize Draw

Each year we hold a Prize Draw at our BFF Disco. If you can provide a donation (funds and/or a prize) to support our draw then please contact us.

BFF Disco 2020

Our annual disco will be held on the 12th June at The St Leonards Hotel, BH24 2NP.

Batten Fighters Forever Disco


Tickets available at Here


Share, share, share!

Raising awareness is just as important as raising money. Most people have never heard of Batten Disease and without spreading the word, obtaining the funding for treatments or a cure would be an impossible task. Visit our Facebook page and give us a “like”, or use the social media buttons on any of the pages of this website to share our message.

Make BFF your chosen cause

Look after the pennies and the pounds will look after themselves. No matter how “little” you think you will be able to raise, every single bit will go towards a better life for Batten sufferers. So why not raise money and have fun at the same time – Run For Charity has a Top 100 Fundraising Ideas list on their website!

Contact us directly if you wish to discuss a fundraising idea.

Watch this space…

We’ll periodically post new fundraising activities that you can get involved in. Click the Follow button in the right-hand sidebar to be notified every time we publish a blog post, so you’re always up-to-date on what’s happening.

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For all those fundraising and donating their money and/or time, we thank you from the bottom of our hearts